Aaron's story
"...walking through the door of the Centre was like a burst of sunshine"
“Having Aaron was such a shock. At 42 we'd known there was a risk and we'd declined the
amniocentesis, but you don't really think its going to happen to your family. When he was
born, it was me who thought that he might have Down syndrome, even though the professionals
didn't think so. But, they did the test and then we had to wait five days for the results to
confirm it...
“As we were leaving, one of the midwives gave me a paper about the Sarah Duffen Centre and
told me to get in touch with them, but all I could think was that I didn't know how we were
going to get through the rest of our lives...
“Well, just walking through the door of the Centre was like a burst of sunshine. There were
all these pictures of children on the wall and they weren't at all how I'd imagined children
with Down syndrome to look. It was like a huge oppressive cloud lifting from me. People came
up and talked to us, talked about their own children, and suddenly I didn't feel alone any
more, and I could picture Aaron as one of the children on the wall.
“Since that day we've gone from strength to strength. Aaron had his heart operation at three
months and has recovered beyond our wildest expectations. We are still in touch with the
Centre regularly, and take great comfort in knowing that they'll be there whenever we need
them. We know we have challenges ahead, but we just feel that Aaron was meant to be with
us.”
Marie, mother of 9 month old Aaron.
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