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Our achievements

Over the last 30 years, our work has led to many key advancements in research and education for individuals with Down syndrome.


Research achievements

Since 1979, our continuous programme of developmental and educational research has led to many key advances in our understanding of Down syndrome. We have improved understanding of the condition and pioneered effective teaching methods that deliver marked improvements in the development of speech, language, reading and cognitive skills.

Publishing achievements

Over the past 20 years, the charity has published newsletters, books, teaching materials, an academic journal, and a periodical for parents and practitioners:

  • Web sites - we have published books, newsletters and journal articles online since 1996. Web site visits are set to have tripled over the 2 years to August 2009 with over 75,000 people now making repeat visits to our primary information web site (Down Syndrome Online) and we are publishing our See and Learn resources online
  • Down Syndrome Research and Practice - in 1993, the charity launched a specialist academic journal to promote the exchange of information and research findings among the international academic and professional communities. Down Syndrome Research and Practice is now the leading international academic journal publishing original scientific papers addressing the full range of issues involved in the care and development of individuals with Down syndrome.
  • Down Syndrome Issues and Information - this unique range of books examines issues relevant to the lives of people with Down syndrome from birth to old age. It has been the charity’s most ambitious publishing project to date and provides a comprehensive reference resource for families and professionals in a variety of disciplines. The Education and Development series and the Adult Living series are now nearing completion, and the Health series will be completed in 2010. With 33 Down Syndrome Issues and Information books available to date, the charity has already sold over 90,000 copies of the English editions around the world. Much of the Down Syndrome Issues and Information Education and Development series has been translated and published in Spanish. Several books have also been translated and published in Norwegian, Arabic and Vietnamese. Discussions are underway for further translations and adaptations.
  • Video films - since our earliest research projects, we have produced practical videos for parents and professionals. More recently, we have been developing a new series of films – Down Syndrome in Practice.
  • Mail order service - We operate a specialist mail order service, supplying recommended books, teaching materials and videos. In early 2009, we opened an online store and in mid-2009 we will open a US online store and North American distribution service. We currently serve 4,900 customers in 67 countries.

Training achievements

Down Syndrome Education International staff regularly present at many conferences and workshops around the world. Over the past 2 years, staff from the charity have led over 60 seminars and workshops in over 35 locations, reaching over 7,000 participants. These included workshops for parents, training course for practitioners and scientific conferences for researchers.

In 2009, we launched a new global programme of Down Syndrome Education Conferences, offering expert information and training for families and professionals. The conferences include targeted tracks covering the nursery/kindergarten, primary/elementary and secondary/high school years, offering unique opportunities for support, advice and professional development.  

Consulting achievements

The charity offers specialist consulting services to organisations, schools, education and health authorities and individual assessment services to families. In recent years, we have provided consulting services to nonprofit organisations in the UK, the USA and Russia, and to schools and government organisations in the UK and the USA.

Education achievements

Down Syndrome Education International offers preschool early intervention and support services to families within 70 miles of The Sarah Duffen Centre in Portsmouth. The service offers expert advice on speech, language, communication, social and motors skills development. It also provides a supported group for longitudinal early years research and programme development and evaluation.

Similarly, Down Syndrome Education USA is working with the Down Syndrome Foundation of Orange County supporting its Learning Program serving over 100 families in southern California.

We have supported inclusion in schools near our research and education centre in Portsmouth, UK, since 1986.

Outreach achievements

In 2008, Down Syndrome Education International initiated efforts to improve the impact of our work in low and middle income countries. We have begun to develop partnerships in Africa, southern Asia and Eastern Europe. In 2009, we began our first major outreach project in Ukraine through a Corporate Social Responsibility partnership initiative with EDB Business Partner ASA, a leading Nordic IT company.

In March 2009, we launched a public Global Education Fund and appeal for support for further outreach work.


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